End of Life Care 2018
Overview
This report explores the views and experiences of the Wigan Borough residents relating to end of life care. It is intended to inform the Care of the Dying Strategy that is being developed by the Wigan Clinical Commissioning Group and local partners. We facilitated group discussions in community spaces, the discussions were intended to capture detailed feedback from a broad range of residents regarding their direct or indirect experiences of end of life care.
Five key themes emerged from the focus groups: Talking about end of life, information sources, communicating end of life, a good death and Advanced Care Plans (ACPS)
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Key findings
Talking about end of life
• Participants appeared generally comfortable talking about end of life with family or loved ones
• Some participants expressed anxiety and a feeling of not being ready yet to talk about end of life
Information sources
• Participants access End of Life Care information from a variety of sources
• Internet sources appear the most popular source of information about End of Life Care
Communicating end of life
• Opportunities to obtain/share information about End of Life Care should be accessible in a variety of public spaces
• There should be more readily available information about Advanced Care Plans and more support around end of life arrangements more generally
A good death
• People want to be offered choice
• People want their end of life experiences to be person and family centerd
Advanced care plan
• There is a general lack of information and awareness about Advanced Care Plans